The Infectious Diseases Community Reference Group was established at the Telethon Kids Institute in 2007 to inform the wider community about infectious disease research and for community members to provide valuable input. The Infectious Diseases Community Reference Group is now part of the Wesfarmers Centre of Vaccines & Infectious Diseases.
The group consists of community members from the metropolitan area, and representatives from the Western Australian Department of Health, the Institute's Wesfarmers Centre of Vaccines & Infectious Diseases, and the Consumer and Community Health Research Network.
Most of the Centre's infectious diseases work focuses on ear health and lung infections in Aboriginal and non-Aboriginal children; skin infections and rheumatic heart disease in Aboriginal children; approaches to improve parents' knowledge of childhood vaccinations; better ways to monitor and improve the safety and efficacy of childhood vaccines; and studies on the safety and efficacy to vaccinate or give probiotics in pregnancy to prevent serious maternal and early childhood infections.
What is the purpose of this committee?
The Reference Group provides a community perspective on infectious disease research at the Telethon Kids Institute.
The committee also:
- Identifies gaps and priorities for vaccines and infectious disease research at the Institute to ensure we are responsive to the concerns of the community
- Provides input into ways to inform the wider community, particularly those most affected, about our vaccine and infectious disease research
- Has an advocacy role in matters related to infectious disease research
- Provides input into "seed funding" of project
Click here if you would like to participate in the Infectious Diseases Community Reference Group.
What is expected of committee members?
No prior skills or expert knowledge are required. Vaccines and infectious diseases affect everyone so we are looking for:
- Parents (and future parents)
- Men and women of all ages
- People from metropolitan and remote areas
- Aboriginal and non-Aboriginal community members
You are welcome to bring your children or grandchildren to the meeting.
We ask that you:
- Have good links to the community
- Have an interest in, or experience of child health and wellbeing
- Respect and adhere to confidentiality requirements
- Respect the views of all other members
What is the time commitment?
Meetings are held 4-6 times per year, and are generally 1.5 hours (meeting days/times are made to suit members). Members are asked to commit to a minimum 2-year term.
Where will meetings be held?
Meetings are currently held at Telethon Kids Institute (100 Roberts Road, Subiaco, WA). From mid-August 2018, they will be held at our new home at the Perth Children’s Hospital (QEII Medical Centre, corner Winthrop Avenue & Monash Avenue, Nedlands).
For people living in rural areas we will provide video conferencing options.
What expenses are offered?
Out-of-pocket expenses are covered. Free training is offered by the Consumer and Community Health Research Network.